Collaboration with public engagement around Rare genetic conditions has involved the release of a series of Rare/D Podcasts, starting conversations about what it means to be rare.
A rare disease is one that affects less than 1 in 2,000 people. Despite the ‘rare’ title, around 3 million people in the UK are affected by a rare disease, and 1 in 17 will have one at some point in their lives so collectively they’re pretty common.A rare disease is one that affects less than 1 in 2,000 people. Despite the ‘rare’ title, around 3 million people in the UK are affected by a rare disease, and 1 in 17 will have one at some point in their lives so collectively they’re pretty common.
Hosted by Mariangels Ferrer with the BBC’s Nichola Garde, the podcasts include a variety of guests from professors to schoolchildren and topics of conversation range from the 100,000 Genomes Project to how we help people tell stories about their lives in ways that make them feel stronger. Why not join the conversation?
